2011 Strollathon For Rett Syndrome

Written by Rick Poppitz Thursday, August 18 2011 16:10

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Join us Sept. 17th, 2011 at Sar-Ko-Par Trails Park in Lenexa, KS, for the 2nd Annual Kansas City Strollathon for Rett Syndrome research. This local event is a part of a larger fundraising effort of the International Rett Syndrome Foundation (IRSF). The strollathon raises funds for Rett Syndrome research by having a fun filled family event, with a silent auction and other great activities for children. Get people to sponsor us to walk 1 mile around a lake. Come on out for a fun morning in the park and show your support for the Kansas City area children affected by Rett Syndrome.

2nd Annual Kansas Strollathon

Saturday, September 17, 2011
Sar-Ko-Par Trails Park, Lenexa, KS
click here for MAP

Registration begins at 9:00 a.m.
Stroll begins at 10:30 a.m.

Join us as we stroll and roll our way to a cure for Rett syndrome. Local families and friends come together for this event to raise critical dollars to provide funds for research that will lead to a brighter future for those affected by Rett syndrome. There will be fun activities, including an exotic animal show by Scott from Exotic Animals R Us

We hope you will help us to make it a success!

The local girl we are sponsoring is Alyssa Stoiber, whose mom, Shannon, is the Regional Chairperson for the Kansas Strollathon.

If you would like to make a donation, please click here to visit Alyssa's Angels page, where you can securely donate online

Alyssa's Story:

I am 9 years old and I live in Olathe. I am so lucky to have a lot of friends at school, they are fun to be around. I love anything to do with the Disney Channel. Also I like to listen to all kinds of music, but “The Who” is my favorite band. I love to ride my horse, Rock, during Hippo-therapy. I also enjoy aquatic therapy especially the hot tub which is my reward for all my hard work. I love to laugh and have a goofy, sassy personality that just wants to have fun and live everyday to the fullest. I also suffer from Rett Syndrome.

Rett Syndrome is a Neuro-Developmental disorder. This disorder primarily occurs in girls 1/10,000 live births. I was 2 ½ when I was diagnosed. I developed normally until about 6 months of age then I went through a recession. I used to be able to feed myself and play with toys now I have lost all purposeful hand usage,the ability to use language and loss of motor skills. By the time I was 3, I had lost all my skills except sitting up. My family has to take care of all my basic needs and more for the rest of my life because I am not able to do it by myself.

Despite suffering from Rett Syndrome, I am a strong girl and always have a smile on my face. My family says that my laugh is the greatest gift. And that I am truly a blessing to them !!! Please help us find a cure for this devasting disorder and help me and my fellow rett friends.

Photos of the girls from last years Kansas strollathon:

About Rett Syndrome
Rett Syndrome occurs mostly in infant girls. Symptoms appear after an early period of apparently normal or near normal development until six to eighteen months of life, when there is a slowing down or stagnation of skills. A period of regression then follows when she loses communication skills and purposeful use of her hands.

For more information on Rett Syndrome click here to visit the IRFS website